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Written by: Magenta Rose 2004
This page is all about me (Magenta Rose) and my medical condition called scoliosis. By writing this page, I hope to help someone out there deal with there own condition, and realize that they are not alone. It was also written to shed some light upon this crippling disease to the general public. There are pictures of scoliatic spines posted on this page, including my own, just to give you a "heads up". There are also helpful links at the bottom of this page for those of you wanting to research scoliosis further. |
My ChaptersIntroductionThe Awakening The Reality..or Surgery Rather.. Childhood and The "Teen Years" Adulthood, and The Re-Awakeing Scoliosis Links and Research |
IntroductionI must first start by saying that I have written many drafts of this article, and I never have found the courage to post any of them for the public. I don't know why that was..perhaps I didn't want pity from strangers because I get enough pity from the people I know. Or perhaps I never found the right words to say because this is difficult for me. Or another reason could have been because on the Internet, I do not have to show my imperfections...I can be as beautiful and heathy as I want to be, and writing this WILL show my imperfections. There are a lot more reasons for the procrastination of this article, but I will not go into all of them. The most important thing is I have finally found the courage to share this, and here is how.... One day, I looked at myself in the mirror and found strength in the image staring back at me. That day marked a very important day for me because I realized even though I have a disfiguring condition, that doesn't make me any less beautiful then the women in the magazines, or the media. And even though I live with a lot of pain everyday, I'm not ready to give up on my life, and I want to stop feeling sorry for myself. Then I said out loud," I AM beautiful, I AM worth something, and I'm not ready to give up on my wonderful life!!!" And by writing this, I hope someone with the same or similar issues can find strength within themselves, and know that are not alone. I hope they can look into their own reflections and realize that we are all different, but that's what makes US ALL BEAUTIFUL! Here is my story...
The Awakening
In 1987, I was diagnosed with a back condition called scoliosis. The beginning is a bit fuzzy to me because I was very young, but I remember having a lot of back pain that we (my mom and I) could not explain. My mother took me to the doctor and he noticed a "slight hump" in the ribcage of my back, and suspected that it was scoliosis. He gave me an x-ray, and the x-ray confirmed his suspicions. The term "scoliosis" was very foreign to us, so the doctor explained it to us. This is what we learned that day:
"Scoliosis is a curvature of the spine that has many different forms, is very mysterious, and mostly affects females. 80% of all scoliosis cases has no known cause. Some cases of scoliosis never progress, some do. We'll just watch and see how her scoliosis does." (My spine was only curved about 28 degrees at that time, which was not reason to "freak out" yet.) Well, a month went by and my scoliosis progressed tremendously, according to x-rays. It curved to about 36 degrees and looked like the letter "S", so my doctor thought is was definitely time to see a spine specialist because I curved so rapidly. So, it was off to a big, scary hospital for me!! (Riley's Children Hospital to be exact.)
The Reality...or Surgery Rather...
After only a couple of visits to Riley, a "nameless" doctor decided I needed a surgical procedure that involved slicing my back open from between my shoulder blades all the way down to my lower spine, then fusing surgical steel rods to my spine. The procedure was called "Harrington Rod Fusion" and it involved attaching 2 Harrington rods to both sides of my spine in hopes that they would stop the curve from progressing, and eventually straitening my spine.
Ok...now I'm fast-forwarding past the pain of the surgery and the healing process to avoid yawns from whomever is reading this, because it's obvious that I'm ok, or I wouldn't be writing this. Let's just say it was a difficult process. So on to a more interesting subject matter. After the surgery, life was pretty normal for me. I was healing very nicely. I was home schooling (because of the surgery), I was learning to draw, I was into Nintendo (don't laugh...I know Nintendo is old, so I'm showing my wrinkles here. ~lol~), life was just plain good!! The surgery made me about 1 1/2 inches taller, and I couldn't have been happier. My family and I thought scoliosis wasn't as bad as it sounded because for the first 6 months, I was doing great! But...we had no clue about my impending fate, we didn't know that everything would unravel and I would "relapse." We kept getting bad news, no.. worse news at every check-up. About a year post operation, the "nameless" doctor informed my family and I that my spine was "cranckshafting", which meant not only was the curve was increasing, but the lower spine was spinning around. He informed us that crankshafting was an unusual phenomena, so he wasn't sure what caused it. (But in later years, we found out why.) At that time, he felt we didn't need to do anything about it.
Childhood and The "Teen Years"
As a child living with scoliosis, I can't say that my life was normal. Not only did I have to go to countless doctor visits that involved a countless number of x-rays, but I was held back from normal childhood activities. I missed out on jumping on a trampoline, riding a roller coaster, being in dance classes, etc., all in fear that spine might become more injured. I wasn't athletic at all, so I had tremendous trouble with PE classes at school, and always being picked last for teams. I had some pain in my back and hips, and that was another reason for being held back physically.
But on the bright side I had many childhood friends, and a very supportive family. I became very intelligent since I didn't have to focus on cheerleader try-outs and such. I was an honor roll student, and loved to learn. All-in all, the childhood years were pretty good. All throughout my childhood, the scoliosis progressed, but not rapidly. Some days I had back pain, sometimes I didn't. But, as my condition worsened, so did the rib-hump and it was visible though my clothing. And that was the start to some self-esteem issues by the time I reached 14. I hated my body, I HATED the way I looked in a bathing suit, and I pretty much hated myself for being "ugly". I lost interest in school and all the things I loved. When I reached 17 years old, I quit school, and became quite interested in the party life. I drank, smoked pot, tried other various drugs and wanted to be loved SO much that I was open to anyone. (If you know what I mean.) I was a classic case of the "troubled teenager". I spiraling into the dark abyss, and as my soul spiraled, so did my spine. My life didn't recover until I met my dear husband, Marlevane at the age of 21.
Adulthood, and The Re-Awakeing
Like I said above, my life sucked until I met Marlevane. The day we met, we instantly fell in love, and he showed me that I am beautiful. He was my rock, my support, and still is to this day. He saved me from misery, and turned my life around in ways that I never thought possible.. Anyway, we got married and I became pregnant with our daughter. The pregnancy was normal, all in all, except I had a lot more back pain the normal women. I had Ariana on Aug. 9, 2000 by natural childbirth. (When I say natural, I mean natural. I was not able to have an epidural due to the curvature of my spine. OUCH!! ~lol~)
But, after the birth, my spine became so much worse, as did the pain. I had trouble standing up for longer then an hour at a time, I could not work or do normal things. Since I was having so much trouble, I went to see the "nameless" doctor again. He x-rayed my spine, and it showed that the metal rods in my back became bowed, as if they were not holding anymore. So, I was thrown on the operating table once more, to remove to rods. But, to no avail, the rod removal did not help the pain and I continue to live with it. My spine is now at a whopping 75 degree curve, and there is no hope for improvement. To this day, I still cannot do physical work, but I do not let that stop me because I own my own web design business, and work from the comfort of my home. I have a very strong faith in Wicca, and the Old Ones help me "climb mountains" everyday. I have a loving husband that has shown me what true beauty is, and I wonderful daughter that I adore. And even though I am very limited in the physical world, I love my life and would NOT trade a minute of it! And to the people that are just like me I say, "Don't let your body limit your mind. Don't feel sorry for yourself and give up on your life. There is always hope for you, because I am living proof of it...."
Scoliosis Links and ResearchIf you would like to learn about scoliosis in detail, please click the following links. They are very helpful!!
Scoliosis WorldThe following link is an e-book download that tells parents warning signs of scoliosis. Please feel free to download to your own hard drive for future reference. To download, right-click the link, and "save target as". Informative Scoliosis E-book~~ 147 kb download
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